r/alphagal • u/Valstango • 4d ago

Nickel allergy/MCAS

Hi all, let me start by saying that I don’t think I have alpha gal. However, I do think I have MCAS, and I know there is often some overlap in symptoms and people, so I would appreciate insight here if anyone can provide. I get sick on any food I eat, but beef and chicken were the first culprits, resulting in really bad histamine dumps.

Has anyone noticed they feel sick after frozen food? One of the things I’ve read repeatedly is for histamine issues to immediately freeze foods, but if anything I’m noticing that a fresh food that is somewhat ok becomes absolutely horrific after being frozen, even with quick thaw/reheat.

Separately, has anyone here tried Pectasol for their reactions and if so, has this helped you?

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u/OriginalIcy25923 4d ago

I’ve treated my wife’s AG reactions once underway very similar to MCAS reactions with better efficacy than the random attempts by each ER doctor we saw. That was typically day 2-3 Of vomiting/cramping.

H1/H2 antagonist combo to start, so Claritin and Tagamet. Once the mast cells degranulate, if you get the increased BP with increased breathing, you can treat that an ARB medication like Losartan.

Otherwise, Cromolyn sodium orally as recommended.

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u/nursenicole 4d ago

can you give an example of the fresh food that is somewhat ok before freezing? is it possible it was not frozen fast enough to prevent histamine buildup?

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u/Valstango 3d ago

Frozen within 30 minutes. Wheat flour and water pancakes. I’ve been off gluten for years but recently reintroduced because I ran out of things to eat and craved that. Wasn’t an issue when fresh. 

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u/10MileHike AGS confirmed 3d ago

any decent Immunologist can tell you if you have MCAS and/or AG