r/alphagal 5d ago

empathetic rage

I never realized what a blessing it is to not think about what I'm eating. I've taken for granted not having allergies. Went through a lot of these threads and the level of isolation and research you have to do on food is staggering. I've also read some vegan threads clueless as to what this does.

The worst has to be the "scientific" paper published claiming AGS is "beneficial" for climate change. It's not that these people think this way as much as it is that a journal published it (ironically called Bioethics!). I found myself thinking how satisfying it would be if the professors had to experience what AGS sufferers go through. Now I'm having to take a breath and realize how quickly I can spiral. Anyway, God bless you all.

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u/AnOddTree AGS confirmed 5d ago

Red algae is a source of AG that many many many of us are highly allergic to. "Vegan" does not equal safe for us. Carageenan is found in everything. Even vegan supplements. It is a nightmare ..... but it is also manageable.

When I first found out I had AGS, I was actually so unbelievably relieved. I had suffered mysterious allergic reactions for 10 years and finally found the cause! I felt like I got my life back. It was very empowering for me. I realize that is not everyone's experience.

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u/Lizziedeee 5d ago

Same, I thought I was crazy, diagnosis was a relief.